The dynamics of sibling relationships with a down syndrome child

Ivena Nathania Victor, Hartanti Hartanti, Mary Philia Elisabeth

Abstract


Siblings of special needs child are often seen as neglected children, especially when the special needs child needs more attention from their parents. This study aimed to find out the dynamics of sibling relationships with a down syndrome child. A phenomenological qualitative approach with data analysis of Interpretative Phenomenological Analysis (IPA) was chosen as the research method due to its suitability with the purpose of this study. The data were collected using in-depth semi-structured interviews on two biological older sisters (24 and 20 years old) of a boy with down syndrome (12 years old). The selection of subjects used a purposive sampling technique, which was based on the specified criteria. Three main themes were found in this study, namely (1) the functions of parents’ role, (2) acceptance towards a sibling with Down syndrome, and (3) sibling relationship. The results showed that the parents’ role in introducing the Down syndrome from the beginning helped the subjects accepted their sibling’s special needs. The subjects’ acceptance was expressed through their actions in supporting their younger sibling to become independent. Each subject also showed a sense of care in their own ways. Sibling relationships with a Down syndrome child were indicated by the existence of warmth, conflict, rivalry, role, engagement, stress, concern, and coping mechanisms.


Keywords


Acceptance; Down syndrome; Sibling relationship; The function of parents' role

Full Text:

PDF

References


Ali, M. M., & Sarullah, S. (2010). Typical Siblings’ acceptance of siblings with special needs. Procedia-Social and Behavioral Sciences, 9, 517–521.

Anjarwati, M. T., & Pusari, R. W. (2019). Analisis Proses Penerimaan Diri Pada Ibu Terhadap Anak Down Syndrome. Seminar Nasional PAUD 2019, 127–134.

Ansbacher, H. (1956). The individual psychology of Alfred Adler, New York, et al.(Harper Colophon Books) 1956.

Arnett, J. J. (2006). Emerging Adulthood: Understanding the New Way of Coming of Age.

Begum, G., & Blacher, J. (2011). The siblings relationship of adolescents with and without intellectual disabilities. Research in Developmental Disabilities, 32(5), 1580–1588.

Berk, L. E. (2013). Development through the lifespan 6th edition. Pearson.

Centers for Disease Control and Prevention. (2014). Facts about Down syndrome. Última Atualização Em, 15.

Cuskelly, M., & Gunn, P. (2003). Sibling relationships of children with Down syndrome: Perspectives of mothers, fathers, and siblings. American Journal on Mental Retardation, 108(4), 234–244.

Dyke, P., Mulroy, S., & Leonard, H. (2009). Siblings of children with disabilities: Challenges and opportunities. Acta Paediatrica, 98(1), 23.

Floyd, F. J., Purcell, S. E., Richardson, S. S., & Kupersmidt, J. B. (2009). Sibling relationship quality and social functioning of children and adolescents with intellectual disability. American Journal on Intellectual and Developmental Disabilities, 114(2), 110–127.

Furman, W., & Buhrmester, D. (1985). Children’s perceptions of the qualities of sibling relationships. Child Development, 448–461.

Graff, C., Mandleco, B., Dyches, T. T., Coverston, C. R., Roper, S. O., & Freeborn, D. (2012). Perspectives of adolescent siblings of children with Down syndrome who have multiple health problems. Journal of Family Nursing, 18(2), 175–199.

Head, E., Silverman, W., Patterson, D., & Lott, I. T. (2012). Aging and down syndrome. Hindawi.

Hodapp, R. M. (2011). International review of research in developmental disabilities.

Kübler-Ross, E. (1969). Death and Dying. Simon and Schuster.

Moyson, T., & Roeyers, H. (2012). ‘The overall quality of my life as a sibling is all right, but of course, it could always be better’. Quality of life of siblings of children with intellectual disability: the siblings’ perspectives. Journal of Intellectual Disability Research, 56(1), 87–101.

National Down Syndrome Society. (2019). What is Down syndrome?

Nielsen, K. M., Mandleco, B., Roper, S. O., Cox, A., Dyches, T., & Marshall, E. S. (2012). Parental perceptions of sibling relationships in families rearing a child with a chronic condition. Journal of Pediatric Nursing, 27(1), 34–43.

Pecchia, L., Chen, L., Nugent, C., & Bravo, J. (2014). Ambient Assisted Living and Daily Activities: 6th International Work-Conference, IWAAL 2014, Belfast, UK, December 2-5, 2014, Proceedings (Vol. 8868). Springer.

Pemerintah Republik Indonesia. (2019). Kementerian Kesehatan Republik Indonesia. Riset Kesehatan Dasar.

Powell, T. H., & Ogle, P. A. (1985). Brothers and Sisters: A Special Part of. Paul H.

Ram, G., & Chinen, J. (2011). Infections and immunodeficiency in Down syndrome. Clinical & Experimental Immunology, 164(1), 9–16.

Sanders, M. R., & Morawska, A. (2018). Handbook of parenting and child development across the lifespan. Springer.

Santoso, D. K., & Handayani, P. (2018). Psychological Adjustment Effectivity in Elder Siblings of Children with Down Syndrome. Ijds: Indonesian Journal Of Disability Studies, 5(2), 231–240.

Santrock, J. W. (2011). Life-span development 13th edition. New York: McGraw-Hill. Schunk, DH (2005). Self-Regulated Learning: The Educational Legacy of Paul R. Pintrich. Educational Psychologist, 40(2), 85–94.

Sarafino, E. P., & Smith, T. W. (2014). Health psychology: Biopsychosocial interactions. John Wiley & Sons.

Scharf, M., Shulman, S., & Avigad-Spitz, L. (2005). Sibling relationships in emerging adulthood and in adolescence. Journal of Adolescent Research, 20(1), 64–90.

Schuntermann, P. (2007). The sibling experience: Growing up with a child who has pervasive developmental disorder or mental retardation. Harvard Review of Psychiatry, 15(3), 93–108.

Sharpe, D., & Rossiter, L. (2002). Siblings of children with a chronic illness: A meta-analysis. Journal of Pediatric Psychology, 27(8), 699–710.

Takataya, K., Mizuno, E., Kanzaki, Y., Sakai, I., & Yamazaki, Y. (2019). Feelings of siblings having a brother/sister with Down syndrome. Archives of Psychiatric Nursing, 33(4), 337–346.




DOI: http://dx.doi.org/10.24042/kons.v8i1.8363

Refbacks

  • There are currently no refbacks.




Copyright (c) 2021 Ivena Nathania Victor

Creative Commons License
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.